Young People and Digital Grief Etiquette 173
gratitude and farewells even on their deathbed. In a handful of other instances,
young patients requested that their palliative doctors and counselors add them on
Facebook or read their blog in order to access sentiment they felt incapable of
articulating in person, in physical spaces, via traditional media.
Despite the very crucial work that such palliative staff engage in, much of
this work is negotiated ad hoc on-the-go as they “play by ear.” Most staff do
“what feels right” based on their individual relationships with their patients, or
on their personal concepts of etiquette and ethics. It is at this juncture that the
insights from the young people involved in my project on grief in digital spaces
will certainly help to inform and shape healthcare industry practices on how the
young feel grief, do grief, progress from grief, and grapple with mortality in the
age of the internet.
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